图书简介

Section I: Foundations of care; 1 Lorna Fraser, Stephen Connor, and Joan Marston: History and epidemiology; 2 Jennifer Mack and Bryan Sisk: Communication; 3 Robert MacAuley and Richard Hain: Children are not little adults the distinctiveness of ethics in children; 4 Myra Bluebond-Langner and Richard Langner: Decision making with children, young people and parents; 5 Erica Brown, Mary Ann Muckaden, and Nokuzola Mndende: Culture, spirituality, religion, and ritual; Section II: Child and family care; 6 Nancy Contro and Jane Zimmerman: Assessment of the child and family; 7 Myra Bluebond Langner and Ignasi Clemente: Children s views of death; 8 Jan Aldridge and Barbara M Sourkes: The psychological impact of life-limiting conditions on the child; 9 Chana Korenblum and Finella Craig: Adolescents and young adults; 10 Amy Volans and Emma Brown: Children expressing themselves; 11 Sue Boucher: Education and school; 12 Veronica Dussell and Barbara Jones: Impact on the family; 13 Sara Portnoy and Lori Ives Bain: Bereavement; Section III: Symptom care; 14 Dilini Rajapakse and Maggie Comac: Overview of symptoms and their assessment in life-limiting illness; 15 Andy Gray, Jane Ridden, Richard Hain: Using medication in children s palliative care; 16 Antoine Bioy and Chantal Wood: Introduction to pain; 17 Stefan J. Friedrichsdorf: Multimodal analgesia in pediatric palliative care; 18 Manuel Rigal, Ricardo Martino, and Richard Hain: Opioids and the WHO pain ladder; 19 Renee McCulloch and Charles Berde: Difficult pain: adjuvants or co-analgesics; 20 David Steinhorn: Integrative approach to pain and other symptoms; 21 Jo Laddie, Alta Terblanche, and Michelle Meiring: Gastrointestinal and liver related symptoms in paediatric palliative care; 22 Adam Rapoport,Sanjay Mahant and Michelle Meiring: Feeding, cachexia and malnutrition in children s palliative care; 23 Julie M. Hauer and Jori Bogetz: Neurological and neuromuscular conditions and symptoms; 24 Pamela J. Mosher and Anna C. Muriel: Depression, anxiety, and delirium; 25 Emily Harrop and Roxanne Kirsch: Cardiorespiratory symptoms; 26 Carol Hlela, Rene Albertyn, and Michelle Meiring: Skin symptoms; 27 Mei-Yoke Chan and Kevin Weingarten: Haematological symptoms; 28 Michelle Meiring and Tonya Arscott-Mills: Palliative care for children with communicable illnesses; Section IV: Delivery of care; 29 Aine Ni Laoire, Daniel Nuzum, Maeve O’Reilly, Marie Twomey, Keelin O Donoghue, and Mary Devins: Perinatal palliative care; 30 Brian Carter: Intensive-care units; 31 Michelle Grunauer and Jenny Hynson: Planning care; 32 Dawn Davies and Justin Baker: Care in the final hours and days; 33 Julia Downing and Joan Marston: Delivering care around the world; 34 Danai Papadatou: Healthcare providers responses to the death of a child; 35 Jan Aldridge and Pat Carragher: Teamwork; 36 Fiona Rawlinson and Michelle Meiring: Education; 37 Susan Blacker and Rachel Thienprayoon: Quality improvement in paediatric hospice and palliative care; 38 Harold Siden and Kimberly Widger: Research in paediatric palliative care; Appendix 1 The Association of Paediatric Palliative Medicine Master Formulary, Fifth Edition, 2020

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